When I was first diagnosed with epilepsy at 13 I had lots of different seizures. The doctors wanted me to record when they happened and was there a pattern. The young epilepsy app helped me do this when I was first diagnosed.
I had a rare brain tumour and it caused me to have a gelastic seizure, which is a laughing seizure and also rare. We always thought I had a funny wee laugh. I got a heatwave up my body and a rush of butterflies. I felt like I was on a rollercoaster. Then the laugh came and afterwards I cried and felt very emotional then very tired, all in the space of 30 seconds. I had these seizures before I could talk. It was such a relief when we found out what it was, because at this stage I was having a lot of seizures each day.
I had laser ablation brain surgery in Texas to remove the tumour when I was 13 and I’m not having seizures now and I’m on medication. Due to where the tumour was in my brain and the surgery, my short-term memory isn’t good, this is where my Cozi app comes in. This app is a family organiser and calendar that my parents and me can both put information into and use to set reminders to me. This is my way of gaining my independence back and I can access it anytime, even on my school iPad.