A Spotlight on Rare Epilepsies
A Spotlight on Rare Epilepsies
1.Have the chat early on, because it is important to be safe.
2. Just have a simple conversation and explain what they should do if you have a seizure whilst they’re around.
3. Ask someone whose been there when you’ve had a seizure to help explain, a friend, or a sibling perhaps.
4. Casually mention it in conversations, don’t be afraid to answer their questions.
We also asked you how those chats went with a new partner. So, take it from these people, like you, who’ve been there, done it and got the t-shirt.
• "They were supportive and appreciative that I had told them."
• "All they wanted to know was what to do if a seizure happens so they can help me."
• "It went really well! Sharing the idea of epilepsy can come as a shock. We’ve had time to get used to it – they haven’t, so just ease them into the idea."
• "Better than expected – every time."
• "Told them right at the beginning – good to get it out the way!"
• "They were really supportive and still are! If I’m having a down moment, they are there for me."
• "I was anxious at first ‘cause I thought they might judge me, but I told them and they are totally fine."
• "I decided to be open and honest. They have been my rock since."