There is currently no cure for Dravet Syndrome. But there is lots of research going on into new medicines and treatments. It’s an exciting time, with scientists investigating gene-based therapies that seek to ‘fix’ the faulty gene causing Dravet.
Unfortunately, in terms of seizures, Dravet Syndrome is one of the most treatment-resistant types of epilepsy. New medicines, such as Epidyolex (cannabidiol) and Fenfluramine may be an option for some, but these medicines aren't suitable for everyone with Dravet Syndrome and responses to the treatment vary.
Recognising and treating comorbidities associated with Dravet Syndrome can be challenging. While improved seizure control can often lead to improvements in comorbidities, this is not always the case. Depending on the comorbidity involved, there are different therapies and approaches available.
If you are caring for someone with Dravet Syndrome, your medical team and other professionals will help you to find the best treatment, therapy and educational plan to achieve a good quality of life.